Thanks! I love you too!

Yes, knowledge is power! But I also needed to reassure myself that it is not necessarily something real serious. The doctor using the word "serious" 3 times did freak the hell out of me, but I need to stay focused on being positive both for me and Justin.

I will miss you this weekend but we are going to be going out to dinner at the golf course Saturday to celebrate both my Mom's and MIL's birthday. It's expensive there but we love it and Rob said "screw it! We need this!" So I am so looking forward to that nice little break from everything. It's a wonderful place in a gorgeous setting with outstanding food! Eric will be working but maybe Justin will come with us. He also loves it there, but my guess is he will be out with friends.

So I'll be out tomorrow and Saturday. Sunday will be cleaning. So all that will keep me busy. I do hope you have an awesome time with your company!

Oh, today is my Dad's birthday! I have put some birthday decorations around his little urn and Justin took some roses to my Mom to put by the large urn! Yes, I am weird!

Have a great day

Luca! The neurologist just called me himself to talk to me and he is squeezing Justin in tomorrow!! We have to be at his office at 1:00 PM!! YAY! This is the neurologist that Eric saw and I loved him then and now he calls me himself and will see Justin ASAP! What a wonderful doctor!

I found a You Tube of the EMG test that Justin is going to have!

http://www.youtube.com/watch?v=k0uSpYd_Ics

It does not look too scary at all! I think the needle part will be the worst of it.

I am not sure if he will get the test done tomorrow or if he will just be evaluated and then schedule the test. Considering the test takes from 30 to 60 mins. I do not know how the doc could squeeze the evaluation and test in tomorrow. I would love it if the test was done tomorrow, but I won't get my hopes up.

All the daycare kids were gone by 4:30 so I went to my Mom's and took her grocery shopping since tomorrow we will be at the doc appointment and I don't know what all will be going on. I think after the appointment I will take Justin to lunch and Target to look at an airlift stool he wants for his "newly remodeled room". Better he doesn't build any stools


A girl at PS made this ballerina outfit for her DZ Bunny! How freaking CUTE!!



Her Alice and Rabbit!

That video is cool. That test seems really tolerable and no biggie. How nice that is all he will have to endure now. I am so glad you got in so quickly! That Neurologist does sound awesome and very user friendly! Good luck tomorrow! I will check in tomorrow afternoon before I leave work to see how it went.

I went out for a ride tonight with a friend since I won't be able to ride this weekend. I threw in a quick load of laundry on my way out the door and got home about 8:30-9:00, ate a quick snack, then started dusting and tidying things up so hubby can do the floors, his bathroom, and finish tidying up the guestroom tomorrow when I am at work. I will stop at the store and pick up some fresh salmon to prepare for dinner and our entertaining will begin tomorrow. It is kind of stressfull to have so many projects to finish, but the house is going to sparkle, the yard and property looks better than it has in ages, and I finally got some backyard landscaping and an arbor...overall, the 2 days of putting up with my alcoholic sister-in-law and hillbilly, gambling addicted brother in law will all be worth it. I know i am terrible.

The DZ bunny is super adorable. If I wind up winning anything in the DZ photostory contest, (heck I can dream I guess!) I would like to get one!

Well, have to go collapse now....TTYL!

Ha! You are too funny! Hey, if that's what it takes to get the landscaping done then it IS worth it! Gee, both you are Aerwin are stuck with the "yucky in-law visit" for the weekend! I hope you are able to have a good time even though they sound like the visiting couple from hell! You sound just like me with all the extensive cleaning when there is company coming or a party planned! Parties always get our butts in gear!

Glad you got in a ride before the weekend!

Oh, that would be so very exciting if you won a Bunny! You know I am wishing you ALL the luck in the WORLD to win something!

Yes, I was so excited to find that You Tube! It put my mind at ease that it will not be too uncomfortable. I just wish I knew if he was having it today or if we will have to schedule it. I would so love to have it done today and have some answer really soon. Yes, our family doctor recommended two wonderful specialists for the boys! I thought the orthopedic hand specialist was fantastic! He was so sweet and took such time with us since we were a "squeeze in". I love that he wanted to get to the real cause of the nerve entrapment instead of just treating the entrapment.

I probably will not be back on-line until late this after noon or sometime in the evening. Have a great day and talk to you later!

Oh man, I know how you feel Aerwin! I hate when we have a project to do and the room or rooms are a total mess! Makes me crazy! It will be worth when you guys are all done though! Sorry to hear you hubby is working such crazy hours

FOUR DAYS???!!!

Hi!

Hope you are having a nice evening with your house guests.

I put all the info about Justin in chitchat.

It was not a great day for him The tests took 2 hours because the doc wanted to check more things. The EMG was rather painful because he had to make the shocks stronger due to Justin's atrophy. We didn't expect the muscle test with the needles.

I took him to dinner at Applesbees so we could talk about everything. If you had told me two weeks ago that we would be talking about this I wouldn't have believed you. It was two weeks ago today he got his bass It was a happy day.

Gotta to go read some more info on HNPP.

Talk to you later~

This is the November Pullip. Here name is Marianne and I seriously want her! I love her from head to toe!

Oh she is cute. She looks like Marie antoinette! I miss y'all putting up doll pics. I know you are busy though. Remember when you had all those elf names? where did you get those? I am babysitting my friends 2 weeks old puppies and I want to give them some elf and fairy names.

Yes, I believe that is what they were going for when they designed her. Even with her name "Marianne". She is just way too cute!

Yes, I know. We need to get more doll pix here! I've just had so much other stuff going on lately.

Elf Names

Have fun with the puppies!!

I'm back! My company left this morning, and we actually had a pretty nice visit. The time went really quickly. Is your company gone too Aerwin?

Wow, that November Pullip is really lovely

Hopefully, I will have time to get back to doll photos again soon. I seriously need to work on my contest photostory and will need your feeback FC and Aerwin to help with the story part. The photos and putting them together is really time consuming so the story writing effort will have to take a back seat.

Hope you and Justin are holding up ok FC...it is good to know that your 87 year old mother in law is just now having really serious problems and led a full life with this disorder. Hopefully Justin will not have serious problems while he is young like Rob and your MIL.

TTYL!

Good luck on the story and photos! Can't wait to see them.

I'm glad you had a nice visit with your relatives!

What worries me is that MIL had no symptoms until her 80s and Rob none until his 50s. Justin already has them at 17. I am starting to think Eric may have it and that is why his limbs bother him at night and he has trouble sleeping. I am so worried about them and what issues they will face down the road.

You are the most wonderful, caring mom to your boys, I totally understand your concern for your babies. I would hope that maybe with an early diagnosis and awareness of the problem that they will also be able to delay problems until much later in their lives. Have you found anything specifically about cases that are diagnosed in late teens like Justin's? Is it rare for it to show up this early?

Anyway after being off the doll site for a few days, of course I find something I cannot live without...please stop me!

As you know I have been seriously wanting a DES head...
Check out this lovely from France!